I left the hospital for the first time here this afternoon, and the break from the room has been very refreshing. Grant and I came to a little coffee shop to get internet and relax a little bit. Just before we left, this is the information our pediatrician gave us:
- She's still on oxygen. They tried taking her off this morning, but it didn't go well. So she's back on. I think they're maybe giving her a little less, if I understood everything he was saying correctly.
- She has a tube going from her stomach to out her mouth to kind of pump her out - they felt like that was part of her digestive problems. Whenever we fed her, she would just puke everything up, so she wasn't getting the food she needed. She's being fed through an IV now.
- On a more positive note, she has pooped twice, which the doctors were really glad for. I think that was during the night.
- They told me this morning that they haven't been able to exactly identify what her problem is, as far as vomiting. There are two possibilities. The doctors feel that the most likely possibility is that something with her underdeveloped lungs is causing air in her stomach, which in turn causes vomiting, etc... so they have to wait until her lungs are developed enough to take her off oxygen to see if everything else is functioning properly. The other remote possibility is that there is some sort of connection between the esophagus and the airway that is causing her digestive system and lungs to, essentially, interfere with one another. The x-rays have not shown that anything like this is wrong, but they did mention this as a small possibility.
- The doctor indicated that at this point he feels she'll need be at the hospital and monitored for another three days. However, they are occasionally taking her off oxygen to see how she's doing on her own and monitoring to see if she's making progress. He does feel that slowly she's making progress on her breathing, but still not where he wants her to be.
So what we are doing right now is waiting for her little lungs to develop enough to try out her digestive system again - that's the best we can understand. I was having a hard time this morning, just seeing her in that little incubator and not being able to interact with her and not being able to do anything for her. But I opened my Bible to Luke 7 - where Jesus heals one and raises another from the dead - and it just reminded me of the power of what God can do. And so we're trusting and waiting and knowing that God is working on her and has her in His hands. Just before we left the hospital to get out for a few hours, the doctor let me go in and touch her and interact with her a little bit so we're so grateful for that. Lots of blessings... please keep praying that things will continue to improve and that the glory would go to God.
Here are a few pictures. We've had lots of different feedback on who she looks like - so we'll see!
just born!
she was on oxygen in this little globe for the first night and day
meeting Daddy...
... and Mommy. I was able to hold her for a long time yesterday afternoon - so thankful for those little moments.
our favorite picture of her so far!
our Doctor taking good care of her
in her incubator this morning
our little family
Thank you so much for all of your notes, comments, love, and most importantly prayers. We know that God is hearing and answering prayer and we are so thankful to be able to trust Him!
love,
Grant & Hannah and Ivory Kaye


What a precious miracle! We are praying for all of you.
ReplyDeleteLove, Bryan and Kara & Family
She is beautiful! Such sweet pictures, praying for you. :)
ReplyDeleteI agree - the picture with the brown blanket is so sweet! Love and prayers - Kochs
ReplyDeleteCongratulations! Ivory is a beauty. :) Praying for you all.
ReplyDelete